Hi fellow warriors - as I'm new to this, can you please tell me what you do regarding exercise and activity during a flare-up, I.e do you do as less as possible or try to keep active due to not allowing joints to get too stiff???? Thank you x
During a flare up forget it. Just getting myself dressed is all the exercise I can get and sometimes I can't do that
I feel you marian literally! How long do flare-ups usually last - this is my first and been 6 weeks now!! Will I ever go into remission I ask myself or is this now my life?!
I have had flare ups on and off since Nov but I have to say at the moment I am the best I have been in a long time unfortunately I have had to resort to drugs. I am on methotrexate and prednisone is now down to 10mg from 50mg.
I'm On just Pred - how long does it take to kick in??
My prednisone use is nearly over. I only have about 2 more weeks of it. It's not kicked in yet. Also on Methotrexate and Mobic. I have had no changes, even with diet change.
Sorry to hear that robin - how long have you been taking the Pred for?
I'm going through a flare up right now and I forced myself to exercise this evening. I feel better for it. But it took about 2 hours to motivate myself and get off the couch. Now my whole body feels decent, except my hands. They are still bothering me. I just did 15 mins on the elliptical and 15 on the treadmill.
Wow that's brace of you dora..... I guess we have to stay moderately active at least
I can't exercise my pain away. I just have to rest a lot more until I can get going again. I can't take a chance at overdoing it. I am 59 and trying to keep my 2 year old grandson. Better safe for me than sorry!
Wow donna i bet chasing after your Grandson is enough exercise in itself, bless x
I know Lili - I walk like that and I'm embarrassed to in public and even in front of my kids!!!!
I use ice and heat-mostly feel it in my hands and wrists, but I do still make myself go to the pool for water exercise or laps/walking and although it's a struggle to get in/out of my suit, my arms, hands and wrists always feel less stiff and inflammed. I try not to use ibuprofen, but do if I have to work. I also will cut back on calories on those days and just have green juice.
Thanks clarissa - how do you do the heat and ice method exactly?
Kay Moyer I just have ice packs I sit with on one hand, then the other and an old electric heating pad. Sometimes I soak them in warm/hot water. I have been interested in trying a paraffin wax dip. Heard those are helpful and relaxing. I also do finger stretches and rub my hands/massage them to increase circulation-even if it is mildly painful. I feel like moving the joints is necessary to keep them strong. Hope some of that helps
Is that like 15 mins ice and then 15 heat?
Yes, or less, I always end up having to do something
I also just woke up and noticed my eyesight isn't ok - seems be blurred and seeing writing on TV etc as double - is that from the RA or the Pred????
Has anyone puffed out or put on weight with the steroids??
I'm on 7.5mg of pred now-been tapering for 3 months from 15-going to 5 this week. I want to get off before the side effects like the ones you mention start. I also read it can damage adrenal system. I have actually lost @ 40 lbs since January because when my initial onset happened I completely changed to vegan, mostly raw diet. And no puffiness, although I have read those are also side effects.
Is that 75 a day Or week clarissa? For how long have you been on the Pred? I guess I'll lose weight too with the diet
Kay Moyer 7.5 mg a day-been on it since end of February.
I find yoga and meditation help.
U feel like not moving cause of pain, but surprisingly if u exercise the pain goes away. U don't even have to do long or strenuously. Don't give n to pain.
My knees wud hurt n wud do couple leg curls n that really loosened up my knees n felt better, try it.
I am lucky to live in Florida. I swim almost every day and sometimes 2xs a day. It helps me get moving in the AM and hekps me fall
to sleep in the PM. I try to stick to a healthy low card diet. I still have flares. I have had RA for 15 years.
I walk, no matter what, I have 3 dogs that need to get out every day no matter how crappy I feel.
During a flare honestly makes it difficult. I joined a gym with a pool and hot tub with a sauna and steam room. The pool is great for less pressure on your joints. I walk back and forth when in pain. I do light swimming on better days. The hot tub and sauna are my comfort zones during a flare. The heat really soothes the pain. I actually feel better with the sauna and hot tub. At home I use heating pad and heating blanket especially in the winter.
My knuckles hurt n knees when use stairs. I'm n Ak so when go somewhere dress warm, I've got alot of nice warm clothes, love the winter. Got myself bunch warm pretty scarves. Get kinda stiff n cold. No worries, just dress warm. Of course helps that my husband helps me so I don't fall.
Low carb and walking
Rest and heal.
I mostly rest and do yoga during a flare. Sometimes walking, depending on which joints hurt the most.
Try going gluten free, check for food allergies and go organic if you can
My wellness coach says to limit it but to stop if you are getting consistant or sharp pains. *Hugs*