I'm following a new line of research at the moment. May I ask about your iron levels. Do you know whether these were low, high or normal before when or since diagnosis. Did you take supplements? In my case my iron blood levels were always quite low and I have a feeling there may be a connection with this and what is going on in my body.
My iron is low also. It's been getting tracked since I was diagnosed with RA and it has remained low. I'm on supplements.
Mine is sometimes borderline anemic. No supplements for it. Just try to eat sardines when its lower
I have been anemic at times, but also vegetarian and usually when my diet was restricted. There are different kinds of anemia I learned recently. At least one is auto immune related and taking iron does not help that version I believe.
I ised to donate blood a lot before getting diagnosed and would get turned away 25% of the time due to anemia. But I dont know what it is now.
Mine was on the low side too but would get into normal range with supplements
I have not had an iron deficiency but I am older and I frequently use cast iron pans to cook in.
Two years prior to my RA diagnosis my iron levels were off the charts high. Had to bleed to bring levels down. The high levels could not be explained.
Dear Lochner Barrera I have an idea of what is going on with you - would you like me to PM you?
Yes please. Although my iron levels have stabalised now.
Mine were also really high prior to diagnosis.
Mine were always low, my doctor said that is typical w/RA. Now I have managed to keep them in the low normal range by eating a lot of kale and other dark greens.
My iron levels have always been high, and still are
Low... Very low
Prior to RA I was a vegetarian for 40 years and had no iron problem. Now I am anemic. Iron levels are ok but my cbc count, which is the number of red bloid cells, is low. My rheumatologist says this is because of the RA. This has nothing to do with eating ed meat cause I am AIP in my diet but I did take elemental iron supplements which brough my anemia number up to borderline low.
Since being on the elimination diet, I stopped all supplements because of added ingredients but recently started again taking a new healthier brand.
normal iron before RA
After diagnosis, anemic, always. Need blood transfusions twice. Now finally normal levels.
Yes, Lisa Nicholas, there is a connection with anemia and high iron levels. It's called anemia of Inflammation of Chronic Disease. If you search "anemia" in this group you will come up with past topics and links to research. Here is one link. https://www.niddk.nih.gov/health-information/blood-diseases/anemia-inflammation-chronic-disease
Thank you for all of your responses. The reason why I asked the question was because I came across some research from 1968 in which synovial material was studied in 23 Rheumatoid Arthritis patients who had surgery. What they found was that there were very high iron deposits in the synovial membrane of all of the patients. Where the deposits were particularly high they also appeared to be rusty. At the same time, 21 of the patients had very low iron in their blood. In contrast 2 of the patients had very high iron levels. It occurs to me that what could be happening is that in RA patients iron is being drawn into the synovial joints and this is leaving the blood short of iron. Is it possible in serious cases of RA patient's joints are rusting?
Lisa Nicholas, you say rust was found? You may also want to read the many articles on iron toxicity found at this site. Many times we show that we're deficient in iron when really we have to much iron that is not getting into the blood, but hiding in organs, joints, etc.... http://gotmag.org/category/iron-toxicity/
Thank you Wynter Boston that's really interesting. There is a lot there and I will work my way through it. My sense is also that Iron supplementation is not a good idea. Interestingly I had low iron for a long time before I was diagnosed with RA. It could be because of my impending condition and iron building up elsewhere, or it could be due to an adaptation or genetic contributor by which my system was designed to have a low iron level. Either way, supplementing in Iron, as I was told to do, does not seem right.
The questions that I am asking myself are: İs Iron supplementation the right thing to do, or should one try and: Limit iron intake; go high on the antioxidants (to prevent oxidation of any iron present) and use chelating agents to draw out any excess iron. It seems to me that some of these things I have already done and it is possible that this has helped the situation. For example, a plant based diet removes red meat (and associated iron) from the diet, at the same time I have sought to take in high antioxidants. I take Curcumin regularly which is a chelating agent for Iron, as well as Spirulina for detox which does a similar job.
Patricia Rae Coxhead if you like I can message you with what I am going to try.
lisa , According to Morley Robbins research, you're correct. Iron supplementation isn't right. We have the iron already there, we just have to get the body to use the hidden iron.
Mine has been low ever since I found out I had RA. I take Iron pills everyday.
Just had an IV of iron today. My iron was so low i was having all sorts of crazy symptoms. Will keep you posted on my results with this.
Normal before and after for me.
Slow for me
I finally have my hemoglobin up to the normal range, but the RDW (sd) and RDW(cv) tests are high. Is that the size of the blood cells or what is that about? I did not have these high numbers before RA.
I'm sorry I don't know about those tests