I have been battling cancer for 3 years now. The first half of 2017 was the hardest. In and out of the hospital with lots of infections. They figured out that the chemo combination I was on wasn't working. My lung cancer was growing and spreading. My Oncologist decided to try me on Opdiva every other week. After only 4 treatments there was no cancer. I am in complete remission. I will continue Opdiva treatments as a maintenance for a little while, then have another PET Scan. I am shocked!
This is great news. Makes you wonder why they didn't try it earlier.
Great News !!!!
During the trial period that I did for this drug we had very strict dates to do things, and meds we could take while on opdivo. We had to fill out weekly forms on our symptoms, I found out I did get the actual drug, not a placebo. I had to wait until chemo got bad enough on my body to stop that. Then the mets went to my brain and that qualified for me to enter the trial. Very grateful for that. It was only those with a second occurrence that were able to be on it for the trial. I think that is all changed now since that trial is over. They have told me I can stay on it for a year on bristol-Myers Squib's dime. After that, who knows. It has kept my tumors stable with very little growth. I stopped planning my funeral and have been trying to figure how to live again. They are watching my kidneys but other than that I would encourage everyone to see if they qualify. I hope it is just as effective for you!!\
Did the opdivo work on your brain Mets?
It didn't work on my mom's. It doesn't cross the blood/brain barrier. But radiation did and the mets are still shrinking
no it didn't. İ had full head radiation 10 times.
I can't do radiation
no brain mets.
I have been on Opdivo for 2 years and am also in remission although my tumors are not completely gone yet... Congratulations to you!!!
How wonderful!!! Please share what type of cancer you have/had..
NSCLC & NHL Lymphoma.
My husband has squamous and pdl1 neg..
So happy to hear this! I'm assuming you had NSCLC?? They won't ever prescribe Opdivo or Keytruda for SCLC. My dad was just diagnosed with stage 4 SCLC with mets to his bones. I am beyond livid that they won't give these life saving immunotherapies to him because he has small cell. Can U tell me anything about why they won't give it to SCLC patients?? It is just because it's not FDA approved for small cell? If so, they need to approve it like yesterday!! Makes me so angry....
They did a gene test on me and I had a gene that Opdiva would work. It's called targeted immunity therapy
So happy to hear your good newsMy sister is not handling chemo well, I will ask our Oncologist about this.
I think it also depends on your gene markers or some such thing. People with squamous NSCLC don't necessarily qualify, whereas people with ademo do. I could be wrong... İt may be another drug I'm thinking of.
yes my lung cancer was adenocarcinoma
Opdivo (Nivolumab) can be used for both Adeno and Squamous NSCLC and you do not need to have PDL1 testing done, as long as you are using it as a second line treatment (After trying a platinum based chemo or Targeted Therapy). It is not FDA approved as a first line treatment. There is also a new Immunotherapy drug called Tecentriq which also can be used as a second line treatment and that too does not require an PDL1 Expression. I started with Chemo (Carbo and Pemetrexed) and it worked quite well for several months, I reach NED (No evidence of disease) but then had "Progression" and my tumor became very agressive -- That's when I started Opdivo (I'm Stage IV NSCLC Adeno) and was never tested for PDL1 -- I had great results with Opdivo, but also side effects (low grade pneumonitis (a known side effect), which developed three times and caused me to have to stop Opdivo). Even so, it's now been 10 months and I am still stable, my tumor is a tiny blip and I have not had ANY treatment since last August. When it works, it can be amazing - sure wish it worked for everyone - you can learn more about Opdivo at this link https://www.opdivo.com/advanced-nsclc and more about Tecentriq at this link - https://www.tecentriq.com/patient/nsclc.html - Good Luck to all and I hope that everyone who reaches NED stays that way for a long long time!
Lisa Navarro Thank you so much for the info. So glad for your good news. Sending you prayers for continued healing and no recurrences
Great news! So happy for you!
Congratulations. May God continual to bless your progress.
Yaaa for you God Bless you. So happy to hear something good. Prayers to you.
Wow this is great news. I'm on Tarceva. I hope I get the same results as you
God is so good. Thank you for sharing.
hey two years ago my mom was diagoned with stage4 and after chemo didnt work they put her on opdivo and the cancer has mostly vanished. She is in remission
Amazing! Miracles do happen
Wow. That's great...
Small cell or non
see her response. She has NSLC.
I have Stage 3 NSCLC with Lymphoma.
Yes, I'm wondering this also. I'm assuming you had NSCLC? They won't give Opdivo for SCLC. Please let mariah and I know which one u had if you don't mind:) Happy to hear U are doing well!
see her response to you. She has NSLC.
That is amazing! !
Me too opdivo
God is amazing!
That's very awesome happy for you I had radiation yesterday and start chemo tomorrow first time
Wow!! How is that drug given?
It is given through IV.
Like how often? How is it diff than chemo?
I receive Opdiva one day every other week. Opdiva is a Targeted immunity therapy. You have to have a certain gene for this to work. Talk to your Oncologist about how it could maybe work for you.