Im trying to see a doctor to get it.
Yes. I've been on it for about five months now. I can't say that it's helping with RA but it seems to be helping my thyroid disease and adrenal fatigue.
Yes. It has helped with fatigue and gotten me off Plaquenil, but it's no silver bullet. I still have to keep a strict diet and still take various supplements. But depression, anxiety and fatigue are greatly improved. Start low, up the dose slowly.
OK what is LDN?
Low dose naltrexone
It's an immune system regulator.
Do rheumatologists prescribe it? I wonder if mine would. I have heard good things here about it.
It's usually something naturopaths and functional medicine doctors prescribe. But it would be worth asking.
I don't think my rheumatologist even knows about it. She's so incurious. I asked my regular doc and she wrote it without hesitation.
I haven't seen my rheumatologist in over 7 years. It sure wouldn't surprise me if they wouldn't have had a clue about LDN.
Yup. It's amazing to me that the thing that has helped me the most is something I had to find out about on my own and ask my doctor for a scrip for. She knew about it, too, and had prescribed it before. Unbelievable.
Right?! My rheumatologist never even mentioned diet having anything to do with my pain. She just prescribed me Plaquinel and like an idiot I took it for a few months and ended up with skin cancer. Then she wanted to put me on something stronger and I wasn't even hurting. I decided I wasn't going back then.
Functional medicine doctor said she would prescribe it for Hashimotos fatigue.
I've been on it for about 6 weeks. I can tell my mood is better and I have more energy. I still have some pain, but I guess it takes awhile to regulate the immune system. I'm going to hang in there.
I've been on it for a year. I'm doing so many things its hard to know what is working. I can say it definately didn't hurt anything I never had any of the side effects that people talk about.
Story of my life
The main side effect I had is it made falling asleep for the first few months almost impossible.
Yes.. I am and it has worked better than any biologic out there
Just make sure you get it through an integrative medicine doctor or functional medicine cause they're the ones that know how to dose it correctly
Thank you lina.
Good luck to you
My ND started me at 3mg. WAY too much. I took the pills and emptied the one into two capsules. 1.5mg a day is plenty for me. I told my ND and she said that was fine... To keep doing that if it was working for me.
Yes, I read the starting dose should be 1.5.
I haven't tried taking more than that in the last five months. Maybe I should but I've finally gotten to a point that I can sleep (with the help of lots of other drugs).
Is LDN a medication or is it natural?
Medication. Naltrexone in high doses is used for those with opiate addiction, but was studied and found in very low doses to help regulate the immune system, especially in those with autoimmune diseases.
Caprice Meier thank's but no thank's do not want to use any medication
I understand, but you might research it before you decide. My naturopath put me on it and she's not one to prescribe a lot of medications.
Caprice Meier there is always bad side effects when using medication
Yes, but less with LDN. All that I noticed was insomnia, but I had that due to adrenal fatigue and high cortisol already.