Hi all, I'm suffering from very weak muscles. Has anyone come across a supplement that might help? Tia.
I was. I know it hurts but I go to a gym and weight train. X really made a difference. Muscles stronger and less pain
Hi janet, I've been going to a gym five days a week for several years, but, since the RA diagnosis over a year ago, I have developed all sorts of problems with my muscle strength so that I just can't do what I used to do. I gather it is a common problem with ra and I wondered if anyone had found a supplement which helps to counteract the weakness.
Elaine Starr are you taking hydroxychloroquine? That caused me to have myopathy. My muscles improved once off it. Also spirulina is excellent for muscles x
Janet Hammond, no, I'm on methotrexate. I was on hydroxychloroquine for about six months but it gave me haemorragic gastritis. I'm now on injections of the mtx as I can no longer stomach pills. I had a bad muscle tear in the summer which came out of nowhere and I ended up in a wheelchair for a while. Also on crutches which damaged my shoulder for which I've just had an operation... But I just can't count on my legs or arms now. I do an exercise one day and they are fine, I do it again the next day and they are suddenly very weak and painful, to the point that I imagine I'm going to have another muscle tear. It's scary. What does spirulina do? X
Are you on any medication now?
Janet Hammond are you saying hydroxycholorquine cause muscle weakness?
I’m afraid I’m in the same boat. Muscle weakness and slow recovery. I haven’t found anything that helps, except lowering the intensity. Don’t stop, that’s worse.
dana, it's horrible isn't it. I used to swim 50-70 lengths five days a week and go to the gym on those days too. I'm wondering how much is the RA and how much the medication. Do you take anything?
Not currently. I haven’t noticed a different on or off medications for this. Was on methotrexate and humira.
Glad you said, don’t stop. Omg, I kept telling doctors about my muscle weakness, they never said anything about possible reaction to the meds. So darn frustrating. Just want answers, then I could maybe deal with things better & not think about it wondering what is wrong. Thank you for the insite
Taking 5 days to recover from a workout was one of my clues that something was really wrong with me.
Dana Gonzalez, have you been off medications for long?
I too use no meds, haven't for 18 years now. I manage with 30+ raw fruits and veggies in a capsule, other dietary changes, exercise and mindset! It's worked best for me...
Do you make these yourself? I would be interested in knowing more
I have muscle atrophy and weakness. I have found that I've been able to get stronger by working out in a pool. I use water weights and this has helped me immensely.
emilie, is that Aquafit?
Elaine Starr No. I do water aerobics at the Y but I'm sure it's very similar.
Was the same last year until May when I started water aerobics 3-4 times a week. I had lost @ 70 lbs, muscle and fat-my legs could barely hold me for more than an hour and I wouldn’t/couldn’t go down in my knees or fully to the floor. Took it slow and easy, continued working on diet and by December went back to bikram yoga 3x a week. Now I can do all balancing postures and love feeling myself grow stronger. Start slow, but start
Do you take any medication clarissa?
Elaine Starr I’m tapering off prednisone, only med I’ve taken.. I’m down to 3mg. Diagnosed last Feb.
Besides medication I take supplements to protect my organs from the side effects of medication and so far my blood test readings have been normal. I also realise that i don't have bruises on my arms if I am taking them. I tested it a few times, whenever I stop taking it, there will be bruises on my arms and sometimes on my leg. So it has been helping me.