I was diagnosed with RA when I was 28 and I was taking medication but I stopped because all of the side effects. When I got pregnant I stopped taking medication. Currently I don't take any medicine I have just been dealing with the pain which is worse in the morning but gets better as the day progresses. I look forward to learning from this group! I am interested in changing my diet I just want a better quality of life. Some days I just feel like I am existing and not living! The major problem that I have is not being able to bend my elbows. They are stiff. Has anyone had problems with that?
Oh, you really should take medicine, now you have a child. My RA got worse after my child, before i didn't have any issues. I believe in medicine and learning more about diet for RA. You shouldn't have to live in pain, it is miserable
I know it shannon. I am going to schedule an appointment with a rheumatologist in the next week. I finally graduated and I have to focus on my health now.
Yes, how old are your children or child?
2 and 5 shannon.
I hope u have help.
Yes I do my husband makes me feel bad at times for the things I can't do but I thank God for my mother she helps me so much.!
Lol its hard for husbands to accept, they're so used to us doing everything! !
It happens to my elbows but my shoulders are the worst. I wanted to get off medications but after I had my son I had a horrible flare that caused difficulty holding him. I was miserable, overweight (gained 50 pounds) and functioned like an 87 year old. I needed relief so I can lose weight, care for my children (also have an almost 4 year old) and live a quality life. I'm currently on methotrexate (had to give up breastfeeding at 5 months; I pushed it as long as I could stand and his teeth coming in helped) and hoping for positive results.
jessica , did u flare after ur first? I'm not sure I could go through a 2nd pregnancy, I am afraid of how much further the disease will change
And in have held off on methotrexate in case of wanting another. I am on humira, plaquenil and now added sulfazalasine. It is SO Hard. Caring for a child when u have a flare. It is taking me like 10 more min to get my 3 yo ready w one hand now; I'm lucky my husband has picked up. Slack.
It is shannon! The flare are the worst.
Praying that it helps jessica!
shannon I flared around 8 months after my first which lead to a RA diagnosis. I had two flares then got pregnant with my second (3 years later). I was determined to have a second child and went into remission during my pregnancy. It was amazing.
I have two boys. My first pregnancy I didn't have any flare ups but my second I had symptoms.
Check out The Paddison Program and Dr John Mcdougall's program. You really need to be grain free, dairy free and sugar free at the very least to get things to calm down. Get a really good probiotic and take magnesium. Epsom salt baths help a lot too. 2 cups salts and 1/2 a cup baking soda and soak for at least 20 mins. Magnesium should be glycinate and vitamin D3 and K2 would be helpful also.
What brand of probiotic do you take dawn?
Can you suggest a really good brand Dawn Valentine?
Thank you so much dawn! I will look into that.
Yes. My worst joint is my left elbow! Can't straighten it all the way or bend it all the way. Sometimes if I twist it wrong, it feels like it gets "caught." It's been inflamed for over a year now.... Some days more than others.
Can this problem we have be corrected with surgery kristen?
I had X-rays done recently and my rheumatologist said that there actually isn't damage to the joint itself yet, so that's good. I think the catching just comes from the inflammation, weirdly enough. Doesn't feel like grinding or bone on bone action.
The inability to straighten and send is because it's swollen. Surgery can't fix that I don't think.
Last summer I couldn't straighten my left elbow. It wasn't painful or visibly inflamed, but a nuisance. My rheumatologist offered to give me a steroid injection in it - which fixed it almost immediately.
Monica Lane oh, yes. When I took prednisone it went down immediately, but staying on prednisone isn't practical and dangerous. I take hydrocortisone every day now, and it seems to keep everything under control for the most part. I'm functional, haha.
I have never taken oral asteroids, but would imagine from the steroid shots I had in my shoulder (for tendonitis) and elbow that they are very effective. Scary though.
My elbows are stiff I believe it's the bones
I was diagnosed with RA six years ago. I was on Placwinel. My joints felt alot better, but the side effects forced me to stop taking it. A year after that, I came down with an auto imune disease called Polymalaisia Ruematica. Devistating disease.... Be carefull
How long were you on plaquenil?
Four years.... Sg....