Muscles? Happens to your muscles? I get such bad spasms and cramps that I can not barely walk. These are more painful than the joint issues for me. Anyone else have this?
yes and when I told my Rheumy dr. She said I need to tell my Primary WTF I thought it was a symptom/result of my RA. I will see mmy pcp in Aughst and let you know what he says.
Sad now how RA Dr's want to prescribe all of the biologics but don't want to handle anything beyond that... Not even for pain. Always tells us to go to our primary. However, if you notice, when they prescribe something for your ailment that you tried to discuss with your RA Dr. They will turn around and ask WHY did they prescribe that or they shouldn't had given you that or whatever remark they want to give. But THEY don't want to get involved! So messed up!
unfortunately if it does not fall in the lines they were trained in they don;t know. I wonder if there are any studies about RA and muscle issues?
My RA Dr. Tested every 3 months... Hormones, thyroid, etc and prescribed meds for everything and all of a sudden they stopped. Now they say to go to primary. However, I personally feel that if they are going to prescribe these strong meds, they should be the ones to go to for pain or anything with the meds they give their patients. But they either want to send you to a primary or pain Dr. It's like they don't want any responsibility for their patients.
definitely. I also want to take it up with my rheumy next visit
My RA always tells me to go to my primary too. I thought my pain was muscle spasms too but I got muscle spasm drug and it doesn't take the pain away. Mine is more of a flare spasms. Nothing gets rid of it except rest is what I have found more. I hate the feeling it drives me crazy. It like o breath in and the hurting pain is there. It's not constant
When I have mine there is no way I can rest. Frustrating.
Have you tried taking magnesium? I take Natural Calm. It's in powder form and you just mix it in water. It helps me a lot. It helps relax the muscles and helps you sleep as well.
Water, gallon a day at least
I drink enormous amounts of water. It is not from lack of hydration.
Yes, but I take Epsom and Himalayan salt baths and drink Magnesium and boron. Stretching each morning like a cat before I get up and yoga first thing. I also run magnesium spray into areas that are sore if needed
Yep. Same here. Was awful for a long time, but seem to have figured out a vitamin regime now that helps me.
As it was explained to me by my doctor, it's the lymph nodes because of my out of whack immune system. My calves swell almost 7" sometimes from when I get up in the morning. It's very tight and very painful. My ankles do not swell and my feet do not swell just my calves and sometimes even my thighs. Diet and exercise have no effect, it has to be a specialized massage to stimulate those lymph nodes. In fact it's been recommended that I limit my intake of fluids because I drink a ton of water! Also detoxes could kill me because the lymph nodes are not getting rid of the fluid. So of course it makes my muscles hurt and I have spasm sometimes. But it all is related to my rheumatoid disease.
Yes, for years. I go to the YMCA and get in the hot tub sometimes when they hurt so bad. I want to get my own.
I do have a jacuzzi tub and it helps but I would like to know if anyone can figure out the route cause and approach it from where it comes from.
Exercise is illusive for me. Sometimes it helps and others it sends me backwards in terms of symptoms and abilities.
Betsy Proctor I've spent nine years trying to figure that out. I think most in this group would agree. It's just a symptom of rheumatoid disease. Plain and simple.
I take VitD. It helps tons for muscle cramps. Make sure it has calcium. We take the gummies and they work. If I run out I get cramps in my feet after a few days
Try magnism supplement.
I've been taking magnesium malate 1250 mg for over a month now. It hasn't done a darn thing for me, unfortunately.
As a child, I was diagnosed with degenerative muscle loss behind my knees. I'm 52 now and the caretaker for mom and disabled bro. Just saw Dr reports from when I was young. Wow, that could have been useful. My rant. Now done
Yes, my main symptom forever. Tried everything, to no avail
Muscle relaxers or magnesium too?
Emily Shipman yes always wondered why it so bad. Do have OA and RA....
Mary Mcmillan Oh yeah, I bet that's what it is. I was born with a clubbed foot so I have a bad leg and back problems so I've never been able to calm it 100% in my back but the combo has helped. I was just on flexeril for a long time then added the mag and couldn't believe how much it helped.
Emily Shipman I too have childhood leg/feet deformities, then car accidents with whiplash and later fusion. Flexeril and others just make me feel hungover the next day Any advice on that? So horrible!
Mary Mcmillan Keep taking it before bed and that will go away. I noticed if I don't take it for a while and then do the heaviness from it comes back so I take it every night whether I "really" need it or not.
I’ve been rubbing doTerra Deep Blue rub on my feet and calves before bed, and haven’t been woken up by cramps. Any kind of good muscle rub cream would probably work
Great item. My husband uses the pills which helps him.
I get leg cramping when my knees and ankles flare.
Try upping potassium and/or electrolytes.
Also add magnesium. I take a potassium/magnesium supplement.