How many of you became too weak/sick to have a chemo treatment? Did you get strong enough to start up again or did you just have to stop? My dad was admitted to the hospital due to being too weak for chemo with poor pain management. They said it is to help get him strong enough for his next tratment that has now been cancelled twice.
I had to stop when I came down with pneumonia and was in the hospital for a week. Went without treatment for over a month before starting up again
Thank you for the feedback. My dad isn't "sick" in that sense. He has been declining rapidly. I think he is end stages but he doesn't want to hear it so the Dr hasn't said it. As long as he wants to fight it we are rallying for him.
My best friend debbie has lung cancer but it too weak to get treatment. She has caught something because her immune system is compromised, so they are trying to work on that. She also has COPD. Patiently waiting for her cancer to be treated. Hugs to you Melissa Rock
My dad did, but after he never resumed chemo. They could not as they found it was causing kidney damage. However the radiation worked on his cancer.... Now however he has lung cancer a new form... And hoping he can take all of his treatment.
Maybe so, and at least it might stop the growth. Might as well use all options... Not sure how much it would help with pain but it's better than nothing I would think.
My weakness stemmed from dehydration after chemo so I would have to go back for 3 days to get in fluids
My dad has only had one round over 3 weeks ago. I think he is end stages but he won't let the Dr say it. We will rally as long as he wants to fight it and we will support when he says he is done.
It was suggested to me to get an IV of fluids for hydration right before treatment and the day after treatment.
Hubby got too weak, sick from chemo, got pneumonia, pulmonary embolism also. Remove from chemo in Feb. Started opdivo in April and getting much better reports! He's had two scans, both shows tumors are shrinking, and he's somewhat stronger, gained weight, so far, opdivo beats chemo
Been on it for 1.5 years great stuff
Hubby is 73, lung cancer stage 4. Was diagnosed Mar 2016. We wanted to start opdivo at diagnosis, but Were told opdivo is for after chemo failed. Now we are hearing patients can get opdivo first.
Debbie Kauffman because last year that was the treatment
Chemo kicked his Bu++, it's so much better on Opdivo and I'm glad new patients can now skip chemo and try opdivo. I hope yours and his opdivo treatments continue to always work perfectly
Debbie Kauffman I lost 60 pounds on chemo, I was very ill
I must have been a lucky one because I had very little weakness or issues during my treatment. I would get tired and sleep a lot about 4 days after chemo but then came back. One thing my doc said and I followed was EAT ANYTHING AND EVERYTHING I wanted and could during treatment. Other than that I took a multi vitamin daily.
He is not sick from the chemo. I feel like his cancer is way more advanced than we know but my dad won't let the Dr say anything about it other than "treatment to get better". He had dropped to 112 lbs and had no appetite before chemo even started.
I will keep him in my prayers and be as positive and hopeful as you can. Getting him to eat ANYTHING will help. I think my support from family and friends and their prayers helped me as much as anything else. Mine only affected one lymph node when it was caught but once it gets a hold on them they can help spread it quickly. Everyone's case is different, but love and hope are universal. Pray for him and for yourself and family as well.
We have been trying to force ensures down him. Can barely get him. To drink water and we keep reheating the same cup of coffee throughout the day. Hopefully they can push TPN nutrition to get him feeling a bit better though.
Honey I just hope you can get him through this, but if it's his time you'll have to prepare for that too. Try to spend time reliving some of the golden moments you've had together
What strength of optivo
Opdivo only comes in one "strength" - It's given as a Flat Rate dose of 240 mg by IV, over 60 minutes, every two weeks -
Lisa Navarro yes that's right
Lisa Navarro thank you
My 4th and last chemo was reduced by 1/3 due to neuropathy in my feet and legs.
This can happen to anyone at anytime -- it really depends on how advanced the cancer is, the age and overall health of the patient and the type of chemo or meds he is being treated with. We are all different, they are many types and stages of lung cancer and we all can respond different to the treatments. I wish him the very best...
I understand that and it makes total sense. This has just happened so quickly. His is 57 is on Alimta, Carboplatin and Keytruda. He was diagnosed with stage IV Adenocarcinoma of the lungs with mets to his hip, spleen, kidneys, stomach, 8 tumors in his brain and an additional large inoperable tumor behind his right eye that is pushing on the motor-sensory nerve. He was basically told this was his only option. He was diagnosed 6 weeks ago and had already dropped to 112 lbs before he even started chemo, which he has not had one round so far after 3 weeks of radiation.
Melissa Rock My heart goes out to him, he is young, but as you noted his cancer is very aggressive and has spread significantly to various parts of his body. I will keep him in my prayers. I started at Stage IV and also had a Brain tumor and Pulmonary Embolism. NO warning or symptoms until the brain tumor caused swelling that caused Neuro problems. I was 56 when I was diagnosed and feel very fortunate to have done so well. Prayers ....
That is exactly howy father was diagnosed.
Melissa Rock I truly hope he will improve and respond to the treament... I was very ill, very suddenly and was immediately hospitalized (for about 10 days).... Put on Steroids, anti seizure meds and IV blood thinners and then had my biopsy and more scans and such and learned that my primary was actually Lung Cancer -- the day my life forever changed... İt's scary....
Opdivo sucked the life out of my husband we really thought he was at the end of his battle. To weak to even get out of bed. So they took him off of that treatment and started another chemo. Now he is back to being his self and can mow grass do yard work everything he enjoys. I know Opdivo works for many many others but was not the right one for him.
I'm really happy that he is doing better
He has been truly blessed
Opdivo and all the Immunotherapy drugs can have the potential to cause serious and severe side effects. They are NOT for everyone and unfortunately, we don't know how we will respond before we try them. It's scary? --- I initially declined them because the side effects scared me --- but later changed my mind -- I was lucky, they worked well, but it know that is not the case for us all. At Stage IV I had to make a choice and if I had not chose to try them, I'd likely not have survived to this point -- that's the hard part! It was that or a clinical trial and they too have risks -- It's very hard to make these choices.... I know I'm just very lucky that for me it paid off. I'm so sorry when I hear from the patients who had terrible results and horrible side effects.
Yes I had read on it and seen wonderful results on this page but it just wasn't for him. Luckly we have a wonderful doctor who realized what was happening
Sandy Eastman I totally understand - I had to ultimately stop due to side effects, but was lucky that it still worked and has me stable, but I won't likely ever be able to use it again. You need to be very vigilant and watch for any and all potential side effects and symptoms of them and they can happen very fast. Sadly, because of the "foolish" TV Commercials people think Opdivo and Keytruda can be their "miracle" and don't realize the potential risks. I wish they had NEVER started advertising cancer treaments on TV...
When does the sickness usually start- my dad started chemo on Monday - had it Monday through Wednesday-so far seems ok- just very weak & tired
My dad isn't sick from chemo. From what I have seen, many people don't have bad side effects after their first treatment and best wishes to your dad. He only had one treatment over 3 weeks ago now. His cancer is very advanced and was only found because he had stroke like symptoms one day because of a tumor in his brain pushing on a motor-sensory nerve. He was diagnosed 6 weeks ago and I think he is end stage already. Men ignore so many things they shouldn't.
Melissa Rock prayers for your dad- mine was diagnosed 7 weeks ago- he had shoulder pain - thought he threw out his shoulder then mri showed something - biopsy confirmed lung cancer- spread to brain - adrenal glands & bone - he doesn’t want to get out of bed or do anything - he’s in a rehab because he got so weak with pneumonia
Melissa Rock looks like my dad was diagnosed at the same time, in the same way of your dad and in the same stage. How is he doing? My dad just finished radiotherapy and is too weak for quimio. He is coming home tomorrow with hospice care. If he become stronger we will suspend hospice and try quimo. The doctors don’t believe that will happen but he has hope and we do too.
Cibele Souza, my dad started with 2.5 weeks of radiation for the brain tumors. The numbness in his left side subsided. He started chemo exactly 1 week after radiation ended and has just continued to decline. He started vomiting earlier this week and ended up in the ER for fluids then he also had vomiting with diarrhea. His chemo Wednesday was rescheduled to today but he was just hospitalized to "try to strengthen him for chemo." I don't want to assume anything but I feel my father will follow the same path.
Cibele Souza he had 10 radiation to brain- then the chemo this week- he’s so weak - the new rehab place is nice I told him I want to take him & explore it tomorrow (activities, a little bistro they have there, outside, etc) he didn’t seem thrilled & said if he feels like this (?) he’s not going anywhere - I hope it’s just weakness from all this & hope he’s not giving up - I did catch him gazing into space today then he snapped out of it
My mom was hospitalized once during her chemo. She became so anemic and dehydrated that she couldn't even sit up in the hospital bed. The oncology team decided to give her one more week to rest before resuming her chemo. Thankfully that week after she was strong enough.
I had to skip one of my treatments once because I had lost too much weight.
Yes had to stop last dose because of kidneys getting too close to dialysis. Rested and drank constantly. Started 4th round, hemoglobin went so low needed 6 pints of blood over 3 weeks. Finally finished about 5 weeks after I should have. Coming back slowly