First noticeable symptoms of Rheumatoid Arthritis and what leads to diagnosis?

If you all don't mind what were your first noticeable symptoms and what lead to your diagnosis? I havnt been diagnosed as of yet so I'm not certain but I have widespread pain/tingling/burning, swelling, lack of air spacey feeling. Bloods show alevated liver enzymes, super high b12, high haemoglobin, high wbc, top of normal rheumatoid factor, ANA has gone from homogenous 100 to speckled 320 in the last 6 months and I just feel crap I'm 29yr female, healthy weight, healthy diet.

Simonne Mccoy
S
1 following.
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19 ANSWER

I'm sorry that you are struggling. The bloodwork seems odd--when you do meet with your doc to discuss it? Liver enzymes: Are you on any meds?

My bloodwork is actually okay--none of the typical markers.

My symptoms started with a year of neck pain and stiffness. I also had aching, burning upper back muscles. Sometimes very little energy. Then the pain moved to my wrist and fingers with some noted swelling, then pain in my knee with some swelling... I had MRI done and there was bone erosion and edema

Kristine Gilliam
K

Could be arthritis

Sue Ballard
S

Many kinds of arthritis

Sue Ballard
S

I went from no pain anywhere except lower back which is mild OA to stiff fingers in the mornings, that lasted all day but got better as day went on, tingling in joints that jumped around from elbows to knees, constant flu like feeling but no actual fever, fatigue, hard to move joints like knees would feel like lead when I'd try to go up stairs, etc

Michelle Womack
M

Hi I am 36 and I had been in pain for years high school to be exact but the doctors couldn't figure it out why they were saying it was growing pains. So fast forward to a few years ago. My knees were unbearable so I went to the orthopedist and the surgeon and they couldn't find anything. Sent me to a Rheumatologist and then treatment for RA without a dx because my numbers weren't exactly saying yes to RA supposedly this thing can be difficult to diagnose as it mimics other things. Along with the horrible knee pain I just had an overall not well feeling. Sorry hun. TRY to stay positive it helps and rest.

Rickisha Wooten
R

My initial flare started in January 2017 with plantar fasciitis in both feet and pain in both wrists, elbows and shoulders. Dr thought it was PF, carpel tunnel and tendinitis. Finally in mid-February, a different Dr did my blood work and I was diagnosed then. I had been researching though and felt it was RA, the docs didn't think so because I seemed relatively healthy and it came in so suddenly.

Clarissa Benson
C

It started with my shoulders. I got cortisone shots in each twice. Then it moved to swelling in my hands. Finally pain and stiffness in my feet and toes. When I'd get up in the morning, I felt like I was walking on broken glass. So painful. I could not wear shoes. I had to buy slip on dress shoes.

Raya Carmichael
R

Every thing come in body through mind, be strong and do prayanam and yoga with meditation, you will be cured in due time...

Gandhi Dodson
G

First sign was a swollen elbow. Doctors kept telling me I was working to long at the computer and it was tendinitis, so they kept treating me for that. It wasn't until my feet also started to swell that I went back to my doctor and told them to run other tests because something was definitely wrong. I think stress was my trigger. Recently had ended a relationship and dropped about 75lbs. Lot's of stress on my body.

Kristen Christie
K

Six months before my diagnosis I struggled with planter fasciitis in both of my heels had to get Cortizone shots. Shortly after that came on a severe sinus infection I've never had one like this before. I also had a tooth infection around the same time. So many things were clumping together.
Then out of nowhere came on pain in my right wrist. I had both carpal tunnel surgery's a few years back so I just thought I overworked my tendons as I am a stocker at Costco. I wore my brace for a week I even did for Physio sessions. But my pain kept getting worse and along with that came swelling that increased every day. I could not do physeal anymore as it was sore to even touch. I kept going back to my GP every week until finally I said I was going to go to emergency because I was not getting into the specialist soon enough.
Then they called me with an appointment to see a rheumatoid specialist. She did bloodwork and much investigating and surprisingly to me my test came back very high positive.

Deb Hensley
D

I agree your bloodwork sounds a bit odd in comparison to majority of other RA results, but anything is possible. Have you had an RA blood panel done. If so, what did you find?

I got a 250+ anti-ccp marker after years of trying to get answers. Mine started with painful bottoms of my feet and waking to a few fingers being swollen, hot, unable to move and would resemble "trigger finger" along with extremely random and painful joint pains in my shoulders, wrist, ankle, ect.

Kayleen Piper
K

Sounds a lot like me

Deb Hensley 3 years

Mine started at 17 with coastal condritis, then fibro, the RA, then PA with all thr fixings to go along with it..

Jeannette Webster
J

Once diagnosed we often get told we are now more likely to develop further AI disease. The way it helps me to think of it is that the diagnoses are really just labels for particular groups of symptoms ie the real disease is Auto-immunity. So for me a diagnosis of RA was useful in two ways: 1. It helped make clear that I was sick and assist in getting health related entitlements. 2. It helped identify where the disease was currently attacking in order to target treatment. I've come to this perspective because I'm not a typical case. My pain started in lege joints rather than small and I've had elevated CRP for more than a decade but normal ESR, plus negative ANA and RF. It took seeing an immunologist and getting a referral for a nuclear imaging scan to get a firm diagnosis. This is because the diagnostic criteria was updated in 2012 so previously I had been assssed by criteria that just doesn't pick up RA as early as the new criiteria. I highly recommend seeing an immunologist. In your case they may be more aware of newer diagnostic criteria than a GP and also be able to pick up on dermatology symptoms or thyroid problems that a rheumatologist may miss. That is my take any way. İf you google 'diagnostic criteria for rheumatoid arthritis' you should find a useful explanation of how this works. I did post some links on an earlier comment about this. İf my hands werent so sore I'd find them a gain for you.

Bee Welch
B

I had a rheumatoid nodule on my elbow.

Veronica Donahue
V

I'm 28, and haven't been diagnosed yet. My blood work came back normal, my X-rays came back normal but my hands are stiff every morning and the joints feel swollen. The doc put me on Plaquenil.

Emma Pollock
E

U sound kinda like me except my Rf was high but all other blood work normal. I'm on plaquenil too

Michelle Womack 3 years

How are you liking it?

Emma Pollock 3 years

It's been almost a year now and it's helped a lot but fingers/hands still stiff but much less so

Michelle Womack 3 years

that sounds just like me

Beverley Kemp
B

They put mine down to overdoing it with weightlifting in the gym But a year later and symptoms are still spreading, started in my right shoulder/ shoulder blade and thoracic spine area. Scans were fine except evidence of muscle tightness and bursitis in both shoulders. Funny thing is only the right shoulder hurts, had cortisone shot but didn't last long, on amitriptyline because they think it's a nervous system problem. I now have pain in my shoulder, elbow, wrist, knee, ankle, neck into back of scull and side of face. I don't think there's swelling just a burning. I do get leg edema and wake up with my hands puffy so it's hard to bend my fingers properly but it's more like puff than swollen finger joints. I just don't know but I am certain that this isn't just a be nervous system problem created by a minor shoulder strain. Pre existent issues and blood indicate more than that to me

Simonne Mccoy
S

Having travelled a long road getting referred to physios who would only give me Pilates exercises to deal with severe pain from bursitis in my hip I now know a better approach and if seeking treatment for bursitis would do the following: Google sports, phone and ask that clinic if they own an ultrasound therapy machine, ask for an appointment with someone who knows how to use it. Ultrasound therapy is proven to be very effective for reducing inflammation but most physios will not mention it because they don't own the machine, criminal really, to see someone in excruciating pain then not refer them for the best known treatment because you can't profit from it... Sorry if I sound cynical, fifteen years of treatment for my hip including being admitted tomhospital for four days and being asssessd for surgery but nobody told me about this treatment... I finally found out how effective it is wehn I had a rotator cuff injuring and it was fixed afternoon won treatments. Highly recommend you look into this

Bee Welch 3 years

Oops, 'Google "sports physio"

Bee Welch 3 years

Fixed after two treatments, sorry, my typos are shocking

Bee Welch 3 years

Man this stuff is DEPRESSING To read every day!! We are all born to ache and die with some fillers in between of happiness. It seems it doesn't really matter in life even if you do live a healthy lifestyle we are all found together with our pain and suffering one way or another. I'm going to say a prayer tonight for everybody suffering to be guided to find peace strength hope and some sunshine in their lives

Deb Hensley
D

I know it's really upsetting and seems worse when read from others huh! It's miserable at times but I still have goals and hopes. Got to hold on to that sunshine through the clouds! Loe and prayers back to you

Simonne Mccoy 3 years

Do you smoke or live in a high altitude area

Sylvia Riley
S

Why ask about smoking, does this affect RA?

Fran Fournier 3 years

I was just asking because I was doing an internet search on her symptoms.

Sylvia Riley 3 years

Smoking is very bad for RA.

Amy Bruno 3 years

No neither. Because of the high haemoglobin and oxygen? Yeah I read that, interesting because I quite often feel like I'm not getting air properly and feel bit funny with it

Simonne Mccoy 3 years

I saw that you mentioned something about lack of air space. I hope you get some answers soon

Sylvia Riley 3 years