I am currently in more pain than ever. So far I have been able to handle RA naturally. Since I’ve had my 3rd baby 6 months ago and am nursing her the pain has progressed to be so bad now that I can’t use my hands without pain at all! Anyone have any information on how hormones of pregnancy affect RA?
I am the same God bless you
I’m so sorry. I had my worst flare during my postpartum period. I read that most people go back to pre pregnancy levels within one year, but it’s so hard with a new baby. I got on plaquenil and had great results. I’m looking at having baby number 3 but am terrified of the postpartum flare!
Can you tell what is the relation between giving birth and RA?
Huda Hughes I’m not sure. I know most autoimmune diseases improve during pregnancy because our immune system suppresses slightly so our body doesn’t attack the baby, but my only thoughts on postpartum flares would be due to the body trying to find balance again. I know there is a hormonal connection since more women than men get RA just not sure exactly why. Sorry.
Yeah And that is what I am suffering from now after delivery
Hi nicole, see my comment further down about Bio identical progesterone cream. Hopefully it would help you.
I’m so sorry. This is why my husband and I decided to stop after our second. It was just to painful.
Hi nadine. Maybe my experience can shed a little light and hope. I went to a fertility doctor hoping to get pregnant (no luck though) and he put me on high doses of progesterone (2 weeks on 2 weeks off for a few months). I’m pretty sure it was the progesterone that induces the flares. I started reading and it seems progesterone supplements can stay in the body for months. My guess is as your levels come down your immune system ramps up. I don’t know how long that will take (or if breastfeeding affects it). I know I’m not being very helpful, but the light at the end of the tunnel is once your. Hormone levels have tapered off your immune system will calm down. I won’t be going back to taking hormone supplements again. I’m just beginning to calm down now and getting symptoms under control. I’m sorry you are going through this. I hope you get some answers.
I was able to nurse only 6 month because of the pain, I had to start meds and switched my baby to formula. But the worse flares I EVER had were during both pregnancies. I was miserable all 9 month! And then 6 more...
Most people who already have RA go into remission while they're pregnant and have less pain for months afterwards. Hormonal changes are one of the things that triggers RA for a lot of people too.
Exactly! RA started at age 8. Crippled knees by sophomore high school. Both pregnancies, age 23 and 25, was complete remission. RA returned hard some months after delivery. Progesterone very high in 3rd trimester from placenta, then bottoms out. I use bio identical progesterone cream. Stopped the migraines, stops a flare, balances the excess estrogen from xenoestrogens. Research Dr John Lee.
Thank you all so much!! It is so good to know that one is not alone, though I wish this on no one!
I just know I felt great during pregnancy and within 2 years after she was born I started the worst flare up.
And how are you doing now?
She's 2 years old now, still dealing with my worst flare up.
Ashley, see my comment further down about Bio identical progesterone cream. Hopefully it will be helpful for you
Thanks! I'll check it out.
Ashley Hedrick sorry for your suffering Hope you will get better soon
post partum is the worst, unfortunately I can't offer any suggestions, I went bk onto my meds after 6 months, it was unbearable. X
jax, see my comment further down about Bio identical progesterone cream... Hope you're doing better now
I didn’t get diagnosed until after my 2nd (she’s 3 now) and was told by my Rheumy that being pregnant sometimes triggers it. I might have had it before, just way less noticeable.
Same here. Paleo AIP is helping
I'm failing terribly to get bk on it, everything I love is on the no list
Jax Friedman Do you have any AIP cookbooks? Good food can taste good too!! It’s hard when you eat the same yucky stuff over and over but using the right seasonings can help
I have the Amy Myers book, I'm starting to read it, my main problem is family cooking they'll never eat it, so I'm cooking even more every day.
Jax Friedman there are several ‘simple’ recipes in this one that I like. I didn’t know how to cook until I got RA. Small steps. Some meals in this are enjoyed by my family. Some they don’t care for. It’s a battle.
Thank you so much I'll look on Google x
I had a horrible flare after my second too and I couldn’t get it under control naturally. I had to take the meds, but good thing is I got it under control quickly with the meds and then went back to the natural way and I nursed for over a year. You can nurse on prednisone, plaquenil and some doctors say it’s fine to nurse on enbrel
tamara Do you mean that the severity of the inflammation will take couple of months and then will be reduced??? Please say yes
I'm a firm believer in bio identical progesterone cream. RA started at age 8, mainly hands and wrists. Within a year after menstrual periods started, it hit my knees. Within months, crippled knees by sophomore high school. Debilitating migraines all through high school and for years. Both pregnancies, age 23 and 25, was complete remission. RA returned hard some months after delivery both times. Progesterone very high in 3rd trimester from placenta, then bottoms out. In 2002 i learned about bio identical progesterone cream. It has stopped the migraines, stops a flare, balances the excess estrogen from xenoestrogens. Research Dr John Lee. For me, best thing ever. Note... This is not a synthetic hormone replacement... İt's bio identical, our bodies recognize it as actual progesterone.
Thanks a million for your help Could you please send the picture of the cream
Huda Hughes yes, I'll post one. I get mine at a health store, The Sunflower Shoppe. Whole Foods probably has it and places like that. ProgestaCare is brand I get.. And I get the one with progesterone and DHEA... Not the estrogen one. There are specific, critical dosage requirements if you're still cycling. Must use in conjunction with normal rise and fall of progesterone vs estrogen in body. Recommend container with metered pump, not a jar.
you can get saliva test for hormone levels. I never did. I knew from the symptom list on Dr John Lee website and my response to remission in pregnancy that progesterone was low for me
Great tips Molly Ramey Thanks a lot
I'll have to find a place near me that has that.