Comments on rheumatoid viral arthritis?

Has anyone had experience with viral arthritis?

This may be long I was diagnosed with seronegative RA few weeks ago but before that I tested positive for Epstein Barr virus being reactivated in my system and had all the symptoms of it along with joint pain and swelling I knew ebv was causing this and it’s not really RA per say but now my husband is having the same symptoms!! Pain in some joints swelling numbing nerve pain everything I’m going through so obviously there’s no way we both got RA same time. Someone in one of my ebv groups pointed out how there are many strains of ebv and the one I have must be specific to causing these symptoms. It’s just nuts I even had an mri and my hand shows some erosion in 2 fingers. I am so scared he’s getting this bc he has to work and can’t take time off and how bad I am I would never be able to work now. I’m just trying to figure this all out and what he should start taking. I started researching viral arthritis and says can last 6 months well I’m going on 5 months. Any advice is appreciated. Thank you

Ashley Lamb
A
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Most people are positive to ebv. I am as I have high titers and was just checked again 2 days ago. My RA came out of nowhere so I'm wondering too if the ebv triggered it. What were your titer numbers?

Amy Bruno
A

Yes most of the population has been exposed to ebv initially I originally had mono as a kid but in some people it can get reactivated esp if your immune system is down and that’s the issue. Mine showed recent reactivation. My titers are high.

Ashley Lamb 3 years

Mine too. Mine must be reactivated too. Three of the 4 titers were high. Are you on meds yet?

Amy Bruno 3 years

Yes when the 3 out of 4 are high that means recent reactivation. There are no meds for ebv it’s a virus. I’m taking antivirals and a bunch of other stuff to help with the arthritis also

Ashley Lamb 3 years

What antiviral are you taking?

Amy Bruno 3 years

I've never heard of viral arthritis? Is it permanent? What r titters?

Michelle Womack
M

I didn’t hear of it either until recently google it there’s tons of info lol but pretty sure that’s what’s happening to me. Titers are the blood test result how high she talking about the virus numbers

Ashley Lamb 3 years

I’m really hoping it’s not permanent

Ashley Lamb 3 years

This author Anthony William has a book out about this issue. He believes that the EBV is the root of a lot of the autoimmune diseases including rheumatoid arthritis and gives a natural plan in his book to heal from EBV and autoimmune diseases. https://www.amazon.com/Medical-Medium-Secrets-Chronic-Mystery/dp/1401948294

Wynter Boston
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Yes thank you I have his book

Ashley Lamb 3 years

http://www.medicalmedium.com/blog/epstein-barr-virus-revealed

Dianne Collier
D

Are you taking Monolaurin yet?

Liz Tyson
L

Yes I’m taking that and other antivirals and many other supplements.

Ashley Lamb 3 years

Where do you get monolaurin?

Amy Bruno 3 years

I was diagnosed with viral arthritis caused by EBV in March. I was given Plaquenil and told 6 months to a year before it goes away. I am in the process of seeking out a new rheumy and primary care (for many reasons). I have no idea where I got the EBV and my husband either never had it, or it was so mild we didn’t know about it.

Emily Maxwell
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Wow how did they come to this conclusion it was caused from ebv? I just know this is what’s happening to me to.

Ashley Lamb 3 years

I think it's what is happening to me too. The rheumatologist never said that though. My primary care saud that ebv can cause all kinds of problems. Told me to eat healthy and rest to calm it down. I wonder if the RA will ever resolve?

Amy Bruno 3 years

Amy Bruno I think it will are you taking any natural antivirals? Diet effects me sooo much to

Ashley Lamb 3 years

No I'm not. I'm just learning about this. I was diagnosed with RA almost a year ago and recently started on meds. I'm wondering if I can take the antivirals in conjunction with the meds?

Amy Bruno 3 years

Amy Bruno yes they are natural. I’m taking a low dose of prednisone bc my pain is BAD and swelling

Ashley Lamb 3 years
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How is viral ra diagnosed?

Nilüfer Denton
N

I’m assuming the RA symptoms start around the same time ebv is reactivated

Ashley Lamb 3 years

I don't have ebv but i have ra.

Nilüfer Denton
N

Have you been tested? It would actually be strange to not have the anti bodies, most everyone does. It's just a matter of whether it is active or not.

Amy Bruno 3 years

Yes, tested.

Nilüfer Denton 3 years

That's awesome. All this autoimmune stuff is terrible.

Amy Bruno 3 years

Just to add I do have elevated CRP was about a 13 last time tested and esr rate elevated and high white blood cell count. Besides that all RA factor negative Ana negative and CCP Okay. Also my rheumatologist was not even for sure what was going on she tested me for so many things but decided on the seronegative Ra bc the Mri is showing inflammation and some erosion to 2 joints. She is letting me take time to explore the ebv further she was intrigued by it how I told her many people have joint issues with ebv and wants me to find a doctor that specializes in it so she is def open to this could be causing it. I also have very swollen knees and feet and hands aren’t to bad now. I think need to get in drained.

Ashley Lamb
A

I do have a positive CCP but my inflammation markers are near zero. That was only flagged lab. MRI showed marrow edema in my foot so those two things got me an RA diagnosis. I hate it. Has consumed my life!

Amy Bruno 3 years

When I was first diagnosed it came after a horrific strep throat. One of my best friends who I went to college with at the time was also diagnosed around two months later. I always wondered if it was a virus we both caught that activated the RA.

Sarah Alvarez
S