Anyone on here with stage 3 squamous cell? If so, what treatment are you receiving?

Anyone on here with stage 3 squamous cell? If so, what treatment are you receiving? I don't understand why some people get chemo and others get Opdivo when you consider the differences in them and the promises that Opdivo is showing. Can someone please help me out here? Also, how many of you are being treated at Cancer Centers of America vs. Other cancer centers?

CindynGene Ferrell
C
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18 ANSWER

i don't have that type of cancer but just from reading about opdivo on here it seems like you have to do chemo first before being considered taking opdivo.

Britta Capps
B

My husband was part of the study. He was required to complete the chemo routine prior. I realize there are variations. We used the Mayo Clinic

Geralyn Dukes
G

My mother in law is stage 4 and has had chemo before the opdivo. The opdivo worked a little and now she's starting a new drug.

Misty Boyer
M

Misty Boyer what other treatment is your mum having please !! and what type of cancer does she have x

Jean Curtis 3 years

She has stage 4 non small squamous cell. I'll ask what the name of the new meds are when she gets home.

Misty Boyer 3 years

Misty Boyer Thanks would like to know, I have nssc stage 2b

Jean Curtis 3 years

If I'm not mistaken it's the step system. You have to do the other first. When I started my treatment, opivo wasn't approved yet.

Adonia Vasquez
A

Platium based chemo until it no longer works before being allowed opdivo,

Jean Curtis
J

You need to have been unsuccessfully treated with a platinum based chemo first, and then you are eligible for Opdivo.

Christine Crain
C

How do you know if it is platinum based? My chemo consist of 2 drugs: Taxol & Carboplatin

CindynGene Ferrell
C

Carboplatin is a platinum based chemo (as is Cisplatin).

Jackie Nolan 3 years

Carboplatin is a platinum based chemo.

Christine Crain
C

Your oncologist should tell you and surely you know what your taking !!

Jean Curtis
J

Do not be surprised when not everyone know all the details of what they are taking. For some people getting their heads around it all is so difficult that details are impossible...

Georgia Ritter 3 years

Georgia Ritter I would always ask before allowing anything going into my body although its hard to get your head round you dont just accept it there are always options

Jean Curtis 3 years

It is good you feel this way, but we all have our own way of coping. That is something I have learned.

Georgia Ritter 3 years

jean , that wasn't very nice.

Patti Sumner 3 years

Patti Sumner what was, nt very nice !!

Jean Curtis 3 years
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Have the same cancer. Same chemo plus radiation at the same time. Could have gone to OPDIVO but wanted to have surgery to remove tumor if possible. Chemo and radiation worked for me and will have surgery in three weeks to remove all damage cancer caused (lung and several ribs ). Will be cancer free after that. I'm not sure but was told if I start OPDIVO other options are very limited.

Lee Hendricks
L

Thank you, Lee. I had wanted to ask you what stage yours was. Eddie's surgeon seems sure surgery will still be an option once chemo and radiation are done. You give me hope.

Laura Snider 3 years

Everyone doesn't handle this the same, some put their trust in their Doctors. Some folks want t deal with things as the come to them, and not all the possibilities they can read on line. There is nothing wrong wit that!!!

Patti Sumner
P

They don't want to operate on mine because I only have 10% lung capacity. I had a different type of lung cancer 19 yrs. Ago and had the upper right lobe removed and had chemo and radiation afterwards then.

CindynGene Ferrell
C

I've heard it's the insurance companies. They won't pay for Opdivo until you are no longer responding to the platinum-based chemo treatments.

Kim Villegas
K

I want to thank everyone for helping me understand some of this and all your input!! Prayers for everyone! Let kick this monster's ass!!!!!!!!!!!

CindynGene Ferrell
C

My mom had stage 3. Idk which cell. She did carbo and taxol chemo cocktail

Ashleigh Odell
A

Ashleigh Odell. How is she doing now. How long ago did she have treatment. I am doing chemo and I have had 16/30 radiation treatments so far. Tomorrow will be chemo treatment #5.

CindynGene Ferrell 3 years

She did 12 weeks of chemo once a week and 7 weeks of radiation. She's in remission now. Had the mass removed in August. Due for rescans in a couple weeks.

Ashleigh Odell 3 years

Opdivo would've been the back up if she didn't respond to chemo well

Ashleigh Odell 3 years

Ashleigh Odell My only downfall is that they can't operate.

CindynGene Ferrell 3 years

They told my mom the same thing Bc her lymph nodes in her chest were affected. But chemo helped kill off those cells.

Ashleigh Odell 3 years
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Cindy Wilson, like Christine Crain, my oncologist explained to me, Opdivo is not given until Platinum-based Chemo has been tried and proven unsuccessful.

Linda Waters
L

Thank you! I will ask what her plan is then, if this doesn't work. I love all the input. It helps us to know what questions to ask.

CindynGene Ferrell 3 years

I would like to apologise for my outburst on this thread due to one person who i felt was bullying and critasizing me without being decent and asking first,,,, What i had said was said with no malice towards the person and all of a sudden this person came at me like a vulture, This is not what this is about we are all in the same boat trying to help and advise each other, and basically she should be ashamed of herself,

Jean Curtis 3 years

Jean Curtis, while I don't know any of the particulars(& I really don't want to)I have only received helpful, gracious comments and advice since this past October when I joined this awesome group. I would venture to guess, those who have made mean-spirited comments are likely to be unhappy, scared, frustrated or playing an unforgivable prank. Either way let's pray for them to get a grip and a life!

Linda Waters 3 years

I did not come at you like a vulture, I said "that wasn't very nice" so just stop it already and read the thread. I do not appreciate your name calling. I have never seen such a reaction to being told "that wasn't very nice. Pretty sure you are confused about who was nasty. STOP ALREADY!!!

Patti Sumner 3 years

I have nothing to be ashamed of.

Patti Sumner 3 years
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My husband's oncologist explained to us that every person's cancer is different. There may be some similarities but that is determined from the biopsies. The mutation of the cells is what tells the Dr the information he/she needs to choose the chemo recipe for the patient. There are many factors taken into consideration. I sound like an expert but I'm not -- I just take a lot of notes at my husband's appointments.

Mary Hart
M

I'm being treated at Kansas University Medical Center. Great med center. I have stage 3b inoperable. Took radiation and chemo at the same time. It shrank a little over 50%. Not on anything now just being monitored right now. Still no change this all started 2 years and 3 months ago. Sending prayers to you.

Sandra Puckett
S

Sandra Puckett May I ask you the reason that yours was inoperable? They said mine was because I only have 10% lung capacity and would be too risky to survive it.

CindynGene Ferrell 3 years

They said mine had gone to far and was too close to the second lung. Did not want to take any chances of it spreading there.

Sandra Puckett 3 years

Ok thank you!!

CindynGene Ferrell 3 years

Sandra Puckett, How big was the tumor when they started treatment?

CindynGene Ferrell 3 years

I really don't remember I was in such shock when they told me everything just went blank after that except when they said it was inoperable. Sorry I can't remember. Prayers to you.

Sandra Puckett 3 years
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